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Witness: Trapped in His Own Apartment – Kolya’s Story
Photo © 2013 Kamil Satkanbaev for Human Rights Watch For many 19-year-olds, the world is a place of growing possibilities and increasing independence. Not for Nikolai Titkov. Thin and pale, he spends nearly all day, every day, in bed. Pushed against a wall in his narrow bedroom, the bed is a jumble of blankets and pillows with a table strewn with medicines at its foot. When he was 5, Nikolai – or Kolya as his mother, Tatiana, calls him – was diagnosed with a condition in which his muscles waste away. Over the years, he has lost his ability to walk, write, or bathe himself – relying on Tatiana to care for most of his needs. Even when Kolya does get out of bed, a dangerous exercise given how brittle his bones are, he cannot move around easily. The Titikov’s municipal apartment is cramped, with narrow corridors that make maneuvering between rooms in a wheelchair all but impossible. In March, Russia will host the Winter Paralympic Games. But many people with disabilities in Russia are struggling.
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